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Genetic Testing Reveals Present and Future Health

Now is the time to decide a critical question: How much do we want to know about what's in our DNA and when do we want to know it?

A nurse draws blood from newborn Isabel Undley at the Santa Monica-UCLA Medical Center in Los Angeles. The sample is part of a California program that screens infants for treatable genetic diseases.Catherine Ledner

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Austen Muelder was born on August 20,2002, in a hospital in Santa Barbara, California, a healthy baby in every visible respect. Shortly after his birth, Austen's mother, Angela, was handed a booklet describing the blood testing that the state wished to perform on her son.

California had begun an experimental program to screen newborns for two dozen genetic disorders, a great leap from the four tests required. Angela had no hesitation "if it was going to be for his health." With a small lancet, a nurse stuck Austen's heel. She held his foot over a card of cotton filter paper while blood dropped onto five circles in a row. When the spots dried, the test was mailed to a state lab in Los Angeles for screening. Angela and her husband, Jayson, took Austen home to grandmother Linda Fernandez's house in Ojai. Everything was fine for a month.

"A perfect baby;' ...

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